• Defining and Scoping Participatory Health Informatics - An eDelphi Study 

      Denecke, Kerstin; Rivera-Romero, Octavio; Petersen, Carolyn; Benham-Hutchins, Marge; Cabrer, Miguel; Davies, Shauna; Grainger, Rebecca; Hussein, Rada; Lopez Campos, Guillermo; Martin-Sanchez, Fernando J.; McKillop, Molle; Merolli, Mark; Miron-Shatz, Talya; Trigo, Jesús Daniel; Wright, Graham; Wynn, Rolf; Hullin, Carola; Gabarron, Elia (Journal article; Tidsskriftartikkel; Peer reviewed, 2023-03-14)
      Background - Health care has evolved to support the involvement of individuals in decision making by, for example, using mobile apps and wearables that may help empower people to actively participate in their treatment and health monitoring. While the term “participatory health informatics” (PHI) has emerged in literature to describe these activities, along with the use of social media for health ...
    • Ethical Issues of Social Media Usage in Healthcare 

      Denecke, Kerstin; Bamidis, Panagiotis D.; Bond, Carol; Gabarron, Elia; Househ, M; Lau, A. Y. S.; Mayer, Miguel A.; Merolli, Mark; Hansen, Margareth (Journal article; Tidsskriftartikkel; Peer reviewed, 2015-08-13)
      OBJECTIVE: Social media, web and mobile technologies are increasingly used in healthcare and directly support patientcentered care. Patients benefit from disease self-management tools, contact to others, and closer monitoring. Researchers study drug efficiency, or recruit patients for clinical studies via these technologies. However, low communication barriers in socialmedia, limited privacy and ...